EveryLife Foundation for Rare Diseases

The EveryLife Foundation is dedicated to accelerating biotech innovation for rare disease treatments through science-driven public policy. We see our Foundation as an agent for change of the drug development system, positioned at the intersection between the patients and families of the rare disease community, science and industry experts, and the policy makers who together can effect change. Our mission to improve the regulatory process and to effect policy changes will be realized through insightful scientific analysis and dialogue, expert-led scientific workshops and our dedicated work to raise awareness on Capitol Hill. These efforts will be reinforced and complimented by grassroots support and the steadfast work of patient societies and research foundations.

2015 marks the Foundation's 6th Anniversary, and while we have accomplished a great deal over the last six years, there is still much work that needs to be done. In order to allow us to grow to meet the needs of the community, we are expanding our team.