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Pachyonychia Congenita Project
Salt Lake City, UT | www.pachyonychia.org
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Spport a PC community devoted to development & delivery of therapies to PC patients. Projects include:
·PC website for patients, researchers and clinicians
·Patient Support Meetings
·International PC Research Registry (IPCRR)
·Genetic Testing to identify specific mutations
·International PC Consortium (IPCC)
·Grants for relevant research
·Publications on PC
·TransDerm partnership
·Clinical Trials design and implementation
Spport a PC community devoted to development & delivery of therapies to PC patients. Projects include:
·PC website for patients, researchers and clinicians
·Patient Support Meetings
·International PC Research Registry (IPCRR)
·Genetic…
Temáticas Incluídas
- Infancia & Juventud
- Discapacidad
- Educación
- Salud & Medicina
Ubicación
- 2386 East Heritage Way, Salt Lake City, UT 84109-0100, United States
Suite B, PO Box 9010
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