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Organization

Pachyonychia Congenita Project

Salt Lake City, UT | http://www.pachyonychia.org
Joined in August 2005

About Us

Spport a PC community devoted to development & delivery of therapies to PC patients. Projects include:
·PC website for patients, researchers and clinicians
·Patient Support Meetings
·International PC Research Registry (IPCRR)
·Genetic Testing to identify specific mutations
·International PC Consortium (IPCC)
·Grants for relevant research
·Publications on PC
·TransDerm partnership
·Clinical Trials design and implementation

Spport a PC community devoted to development & delivery of therapies to PC patients. Projects include:
·PC website for patients, researchers and clinicians
·Patient Support Meetings
·International PC Research Registry (IPCRR)
·Genetic…

Issue Areas Include

  • Children & Youth
  • Disability
  • Education
  • Health & Medicine

Location

  • 2386 East Heritage Way
    Suite B, PO Box 9010
    Salt Lake City, UT 84109-0100

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