Volunteer Fundraising Officer / Grant Writer

Organization: FMF and AID Global Association

Location: Remote / Home-based

Term: Volunteer (unpaid)

Reports to: Executive Director

About Us

FMF and AID Global Association is an international not-for-profit organization dedicated to supporting individuals with Familial Mediterranean Fever (FMF) and associated AID (autoinflammatory diseases). Our work focuses on:

• Providing medical assistance to patients in urgent need,
• Operating a helpline for guidance and emotional support,
• Producing awareness and educational materials for patients and healthcare professionals, and
• Offering additional support services to improve quality of life for those affected.

Role Purpose

We are seeking a motivated and experienced Volunteer Fundraising Officer and Grant Writer to help develop and implement a strategic fundraising plan. You will identify and pursue funding opportunities, write grant applications, and establish relationships with potential donors and partners to support our ongoing programs.

Key Responsibilities

• Research and identify potential funding sources (foundations, corporate sponsors, institutional grants, private donors).
• Prepare and submit grant applications and sponsorship proposals.
• Build and maintain relationships with donors, partners, and sponsors.
• Develop a fundraising strategy and pipeline, including short- and medium-term goals.
• Monitor progress and report fundraising activities to the Board.
• Ensure compliance with relevant fundraising and non-profit regulations.

Requirements and Skills

• Proven experience in fundraising, grant writing, or business development, preferably in the non-profit or health sector.
• Strong ability to identify funding opportunities and build partnerships.
• Excellent written and verbal communication skills in English (and German).
• Strategic thinker with good organizational and networking skills.
• Motivated, reliable, and comfortable working independently.
• Familiarity with the rare disease or healthcare field is a plus.

What You’ll Get

• A meaningful opportunity to make a tangible impact in the rare disease community.
• Flexible working hours and a collaborative international environment.
• Recognition for your contribution and opportunities to expand your professional network.
• The satisfaction of helping families and patients directly through sustained medical and educational support.