Organization: FMF and AID Global Association
Location: Remote / Home-based
Term: Volunteer (unpaid)
Reports to: Executive Director
About Us
FMF and AID Global Association is an international not-for-profit organization dedicated to supporting individuals with Familial Mediterranean Fever (FMF) and associated AID (autoinflammatory diseases). Our work focuses on:
- Providing medical assistance to patients in urgent need,
- Operating a helpline for guidance and emotional support,
- Producing awareness and educational materials for patients and healthcare professionals, and
- Offering additional support services to improve quality of life for those affected.
Role Purpose
We are seeking a motivated and experienced Volunteer Fundraising Officer and Grant Writer to help develop and implement a strategic fundraising plan. You will identify and pursue funding opportunities, write grant applications, and establish relationships with potential donors and partners to support our ongoing programs.
Key Responsibilities
- Research and identify potential funding sources (foundations, corporate sponsors, institutional grants, private donors).
- Prepare and submit grant applications and sponsorship proposals.
- Build and maintain relationships with donors, partners, and sponsors.
- Develop a fundraising strategy and pipeline, including short- and medium-term goals.
- Monitor progress and report fundraising activities to the Board.
- Ensure compliance with relevant fundraising and non-profit regulations.
Requirements and Skills
- Proven experience in fundraising, grant writing, or business development, preferably in the non-profit or health sector.
- Strong ability to identify funding opportunities and build partnerships.
- Excellent written and verbal communication skills in English (and German).
- Strategic thinker with good organizational and networking skills.
- Motivated, reliable, and comfortable working independently.
- Familiarity with the rare disease or healthcare field is a plus.
What You’ll Get
- A meaningful opportunity to make a tangible impact in the rare disease community.
- Flexible working hours and a collaborative international environment.
- Recognition for your contribution and opportunities to expand your professional network.
- The satisfaction of helping families and patients directly through sustained medical and educational support.