Clinical Data Manager / Data Steward (Technical Execution)

Human Health Project (HHP) is a holistic health literacy charity. Our mission is to improve the health of the underserved and vulnerable through holistic information, education and advocacy. Our objective is to empower people to manage their own health with improved outcomes and no medical errors. For more information, please visit our website including viewing our "Shared Patient Information" program page which includes 50 pages of reports on both our Migraine and Lupus and feedback received from people who reviewed the reports in the section, "What Our Members are Saying" - https://tinyurl.com/4c5y3mfa and our "Healthcare Access Program" which includes short video courses in our Learning Academy - https://tinyurl.com/4xwdz5wh , Patient Advocacy Workshops in Los Angeles, - https://tinyurl.com/mryave5x and in Northern Ireland - https://tinyurl.com/nhj6kp7p and our Online Peer to Peer Events - https://tinyurl.com/5ddmxuyn

Targeting an informatics professional to bridge your raw patient logs to the OMOP/SNOMED-CT standards required by pharma.

HHP is seeking a detail-oriented Clinical Data Manager / Data Steward to ensure our rapidly growing Shared Patient Information (SPI) database meets "regulatory-grade" data fidelity standardizations. Working under the direct guidance of our experienced Chief Technology Officer (CTO) and Chief Information Security Officer (CISO), you will be the hands-on technical architect mapping user-generated health tracking data into clean, compliant formats that pharmaceutical data scientists can query immediately.

Key Responsibilities

• Map conversational and structured user tracking logs (symptoms, medication compliance, lifestyle factors) into industry-standard medical ontologies, including SNOMED-CT and RxNorm.
• Assist the CTO in structuring HHP's relational database into the OMOP Common Data Model (CDM).
• Ensure data provenance is meticulously documented from user ingestion to de-identified data rooms.
• Run internal quality audits on pilot data (Migraine and Lupus cohorts) to prepare registries for external B2B review.

Qualifications

• Background or active degree program in Health Informatics, Biostatistics, Healthcare Data Analytics, or equivalent clinical data experience.
• Practical understanding of medical coding vocabularies (SNOMED-CT, RxNorm, ICD-10) and relational database frameworks.
• Experience or keen interest in Python, SQL, or automated data transformation pipelines within web stacks (Laravel/React).
• Strong understanding of data minimization and structural data privacy constraints.

Commitment

Volunteer basis, 4–8 hours per week. Perfect for a working professional looking to make a massive impact or a graduate student looking for high-level, real-world portfolio exposure under executive mentorship.