Associate Director of Community Programs

About NBTS:

National Brain Tumor Society (NBTS) unrelentingly invests in, mobilizes, and unites our community to discover a cure, deliver effective treatments, and advocate for patients and their care partners. NBTS is a leading policy advocacy and research organization as well as a convener of brain tumor research leaders including industry, regulators, funders, clinicians, researchers, and patient advocates. We also provide resources and personalized support to patients and families, and we bring all members of the brain tumor community together each year through our walks, races, community events and Gray Nation Endurance programs. Our results include paradigm-shifting research discoveries, the development of new treatments, increased federal funding for brain tumor research, innovative new clinical trials, and opportunities for entrepreneurship and venture philanthropy to benefit brain tumor research and health care delivery.

While we have seen significant progress in terms of scientific understanding of brain tumor biology, we are unsatisfied with the status quo of today’s treatment options. NBTS continues to invest in new ideas and research poised to incent the development and realization of treatments that dramatically increase survival and quality of life for patients.

Position Summary:

The Associate Director of Community Programs will manage and support initiatives within NBTS’sCommunity Program, focusing on community program execution and constituent support. Reporting to the Senior Director of Community, this position requires collaboration across internal departments and with external stakeholders. The Associate Director of Community Programs will oversee projects tied to NBTS’s mission to improve patient outcomes and care, manage public health campaigns, oversee support groups, liaise with community volunteers and program participants, and ensure deliverables and goals are met throughout the project lifecycle.

Supervision Exercised: None

Essential Duties and Responsibilities:

Support the development and implementation of Community Program initiatives. (35%)

• Establish and execute community program plans with the Senior Director of Community
• Host established virtual support groups to foster connection, shared experience, and emotional support for patients and care partners
• Liaise with community volunteers and steward relationships
• Manage administrative aspects of programs, including deck creation and management, coordination of promotion and communications to participants, and other tasks
• Cultivate and maintain relationships with community partners, healthcare institutions and relevant organizations to expand the organization’s reach and impact
• Advise on community response practices from a social work perspective
• Track performance metrics to evaluate program effectiveness

Provide direct support and navigation to patients, care partners, and NBTS’s Patient Navigator (25%)

• Directly communicate with individuals seeking individualized support on non-treatment related issues
• Identify and coordinate referrals to local or national community resources and services
• Maintain accurate records using Salesforce and other NBTS systems

Manage day-to-day operations of public health campaigns (25%)

• Collaborate closely with the Marketing & Communications team to support the execution of public health campaign materials and report on the success of the campaign
• Coordinate elements of campaign meetings, both internal and external
• Coordinate efforts to gather insights from patients, care partners, and providers to inform public health education campaigns and policy development
• As needed, represent NBTS publicly to foster awareness of our public health campaigns and patient and family support services

Evaluate and maintain up-to-date, accurate, and user-friendly patient/care partner content on the NBTS website (15%)

• Implement strategies to improve the quality, availability, and effectiveness of educational resources for the brain tumor community
• Ensure timely review and updates of community website content

Other duties as assigned

Education & Experience:

• Master’s in Social Work required. Will also consider a Master’s in Public Health or a Registered Nurse with relevant experience in public health and/or neuro-oncology.
• 3–5 years of related experience required (nonprofit preferred).
• Preferred experience facilitating support groups
• Experience in public health education and addressing complex health and social issues within communities.
• Experience conducting needs assessments and evaluating the effectiveness of public health programs.

Required Skills, Knowledge, & Abilities:

• Excellent interpersonal skills, including teamwork, flexibility, and empathy.
• Strong organizational and project management skills, with the ability to prioritize multiple timelines.
• Experience in developing and delivering education strategies.
• Proactive approach to problem-solving and initiative-taking.
• Demonstrated success in program development and evaluation.
• Capable of cultivating a compassionate and respectful environment where all individuals feel safe and supported.
• Strong judgment and cultural competency in diverse settings.
• Ability to design surveys, analyze data, and present findings effectively.
• Ability to work both independently and cross-functionally with internal teams.
• Verbal and written communication skills.
• Discretion, confidentiality, and professionalism.
• Comfortable presenting and facilitating in various formats (in-person, virtual).
• Passion for improving outcomes for people with brain tumors.

Work Environment:

The physical demands and work environment characteristics described here are representative of those an employee encounters while performing the essential functions of this job. Reasonable accommodations may be made to enable qualified individuals with disabilities to perform the essential functions.

• Location: Remote/Telework or onsite at NBTS headquarters in the Boston area. Remote work must be performed in the employee’s state of residence at time of hire. Only candidates with a primary work location in the Eastern or Central time zone of the United States will be considered.
• Hours: Normal hours for this role are 9 a.m. to 5 p.m. ET, Monday through Friday. Occasional evening or weekend availability may be required for NBTS events or meetings.
• Travel: Travel to headquarters or event/meeting sites may be required (less than 10%).
• This role is largely sedentary and requires sitting or standing in a stationary position for extended periods of time. This role frequently involves communicating on the phone and operating a computer for at least 70% of the work day.

NBTS provides equal employment opportunities to all employees and applicants for employment and prohibits discrimination and harassment of any type without regard to race, religion, color, national origin, sexual orientation, gender identity, gender expression, age, status as a protected veteran, status as an individual with a disability, or other applicable legally protected characteristics.