senior Director of Government Affairs, Policy, and Payer Access (Patient Access)

About The National Bleeding Disorders Foundation (NBDF)

The National Bleeding Disorders Foundation (NBDF) is dedicated to finding cures for inheritable blood and bleeding disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy, enabling people and families to thrive. Learn more at Bleeding.org!

About the Role

The Senior Director of Government Affairs, Policy, and Payer Access (Patient Access) leads NBDF’s efforts to strengthen healthcare access for individuals with bleeding disorders. In this role, you will cultivate strategic partnerships with payers, Hemophilia Treatment Centers (HTCs), and community stakeholders, while driving solutions that address systemic barriers to care. You will provide both strategic and operational leadership in executing NBDF’s access strategy through research, policy advocacy, education, and oversight of national programming. The ideal candidate must possess exceptional communication, presentation, and collaboration skills, along with the analytical and relational capacity to influence change across a complex healthcare landscape.

Key Responsibilities

Strategic Leadership and Policy Development

• Manage, co-develop with the SVP of Access and Public Policy, and implement the annual payer relations strategic plan.
• Lead the conceptualization, development, and evaluation of healthcare policies and programs, with a focus on advocating for federal and state legislation and regulations change.
• Contribute to annual strategic planning and budgeting processes, including monthly financial management and expense oversight.
• Provide evidence-based policy research and analysis to inform recommendations, strategies, and policy options for senior management.
• Design and lead complex evaluative initiatives and studies to inform decisions on emerging issues affecting health and safety issues.

Access Innovation and Oversight

• Direct the design and implementation of pilot initiatives under the Comprehensive Care Sustainability Collaborative (CCSC), a flagship external-facing program that includes national events and targeted communication strategies.
• Identify and respond to access issues arising from insurance and Marketplace changes, including the development and dissemination of mitigation strategies.
• Lead the planning and execution of NBDF’s Insurance and Reimbursement Conference, positioning it as a cornerstone event for advancing payer strategy and community access.

Stakeholder Engagement and Relations

• Develop and maintain high-impact partnerships with payers, brokers, employers, Hemophilia treatment Centers, government agencies, and advocacy organizations.
• Serve as a representative of NBDF at national public payer initiatives, payer meetings, trade organization conferences, and other forums.
• Collaborate closely with the Hemophilia Alliance Payer Team and other national stakeholders to align goals and coordinate outreach.

Education and Knowledge Leadership

• Provide guidance and technical support to HTCs, NBDF chapters, and payer-facing teams on billing, reporting, and compliance.
• Educate healthcare providers, hospitals, and insurance administrators on relevant systems and policies affecting access.
• Lead the creation and refinement of educational content, white papers, and presentations to support informed decision-making across stakeholder groups.
• Respond to urgent, case-specific access challenges at the patient or provider level; develop case studies where appropriate.
• Maintain expert-level knowledge of 340B programs regulations, payer trends and billing, and healthcare reimbursement policy developments.

What You Bring:

To qualify for this unique opportunity, our ideal candidate should have the following experience and education:

• A Bachelor’s degree from an accredited college or university is required; a graduate degree in public policy, administration, law, or business administration is preferred.
• Minimum of ten (10) years of experience in public policy analysis, education, administration, and/or government relations/affairs.
• Minimum of 5 years of experience working with federal healthcare programs, commercial payers/providers, and/or managed care organizations.
• Excellent public speaking and presentation skills, both prepared and impromptu.
• Strong research, policy analysis, writing, and oral communication skills, including the ability to effectively distill and present complex information concisely.
• Demonstrated ability to lead complex, cross-functional projects while overseeing daily operations, ensuring alignment with strategic goals.
• Ability to work collaboratively with consumers, advocates, government officials, and other outside stakeholders.
• Proficiency in MS Office, internet research, and database information systems.
• Knowledge of health care policy and hemophilia and/or blood disorders is preferred.

In addition, all NBDF employees focus on aligning their behaviors to our core values known as Behavioral Standards which are Respect, Accountability, Service, and Support.

As a Senior Director of Government Affairs, Policy, and Payer Access (Patient Access), how results are achieved is paramount for your success and ultimately results in our success as an organization. In this role, your foundational knowledge, skills, abilities, and personal attributes are anchored in the following:

Communication: You clearly convey information and ideas to individuals and groups through a variety of communication modalities, both formal and informal. You practice attentive and active listening and can synthesize and incorporate information from multiple resources into current discussions.

Project Management: You have the discipline of planning, organizing, and managing resources to bring about the successful completion of specific projects. You have the ability to plan, organize, monitor, and control projects and events, ensuring efficient utilization of technical and administrative resources to achieve project objectives.

Working Strategically: You are willing to align your priorities, planning, and actions with the organization’s strategic objectives. You have a knack for identifying patterns or connections between complex and ambiguous situations that are not obviously related, and you use these to come to conclusions about key issues that affect the organization’s priorities. You always look ahead at the landscape and future possibilities, translating them into breakthrough strategies. You maintain strategic business performance.

Relationship Building: You build both formal and informal professional relationships. You maintain and foster relationships within, across, and external to organizational boundaries. You actively seek advice, support, championship, sponsorship, and commitment that result in smooth transitions of change and the development of mutually acceptable solutions.

Where You Will Work

This position is remote and open to candidates located anywhere in the U.S. Applicants should be comfortable working remotely with a team dispersed across the country. This position requires up to 35% domestic travel (typically 2–3 times per month), often involving overnight stays. Travel includes presentations at HTC regional meetings, MASAC, and other key events. The role also entails participation in multiple in-person and virtual events annually, including our Bleeding Disorders Conference and programs hosted through the Comprehensive Care Sustainability Collaborative (CCSC).

What We Offer

At NBDF our mission is to serve those affected by all inheritable bleeding disorders. We are committed to our employees as well as those we serve. To do so, NBDF seeks and values those qualities, both visible and invisible, that make individuals unique. We strive to be a safe place where regardless of age, color, disability, gender, gender identity, gender expression, family status, national origin, race, ethnicity, or sexual orientation; you are heard, empowered, and valued because we truly believe that every person brings a unique perspective and experience to advance our mission.

In order to attract and retain a high-performance team, we offer a dynamic and rewarding work environment. In addition to a competitive salary, NBDF provides a comprehensive health and wellness program to eligible employees, family members and domestic partners. Our health and wellness programs include medical, dental, vision, prescription drug, preventative care, mental health services and an employee assistance / work-life balance program. We also offer:

• Full time employees: Three weeks (+) of vacation, four personal days, 12 sick days, 11 paid holidays, 1 Floating Holiday, and the Holidays’ week off (between Christmas and New Years’).
• We offer paid time off to Part-Time Employees.
• Paid Short-Term Disability insurance & Life Insurance.
• Pre-tax savings plan (including Flexible Spending Accounts and Commuter Transit Account).
• a 403(b) retirement plan with automatic contributions based on years of service.
• Paid Caregiver/Parental leave.

Compensation

We have carefully considered industry benchmarks, the experience required for this position, and internal salary comparisons to determine the appropriate salary range for this role. For this position, NBDF has set a starting base salary range $105,000-$115,000 and it is non-negotiable due to our company's commitment to maintaining internal pay equity. This approach ensures that we maintain a fair and consistent compensation structure across the organization.

Research shows that candidates from disadvantaged populations are less likely to apply for jobs unless they believe they meet every single one of the qualifications in a job description. NBDF is committed to building a balanced organization. We strongly encourage interested individuals to apply, even if they don't believe they have every quality, strength, and experience listed above. We especially encourage applicants with the lived experience of impairments to apply for roles in our organization. That said, some qualifications, such as specific education or licensure requirements, may be essential for certain roles and cannot be waived. All reasonable accommodation can be provided during the interview and the on-boarding process.

All qualified applicants will receive consideration for employment without regard to color, religion, biological classification, attraction preferences, internal sense of self, national origin, impairment status, protected veteran status, ethnoracial background, or any other characteristic protected by law. People of color, members of Tribal Nations and Native communities, LGBTQ-identified people, gender-nonconforming people, people with impairments, veterans, and people who speak a language in addition to English are strongly encouraged to apply.