Ayden Rae Foundation

  • CA

Address

P.O. Box 1785
Helendale
CA
92342
United States

About Us

Mission:

TheAydenRaeFoundationprovidessupportforlife-savingeffortsinadvocatingandimprovingpatientcareforHGpatients,education,research,andreachingpopulationsatriskfromHyperemesisGravidarum.

We the People petition the United States Congress to make Hyperemesis Gravidarum a national priority

FightingHyperemesisGravidarumTogether

Do your part… there is still time to sign and save babies and mothers who suffer from Hyperemesis Gravidarum. We are ever closer to presenting the petition, so, please, sign, today.

To the Congress of the United States,

Hyperemesis Gravidarum is the most severe form of nausea and vomiting during pregnancy. It can lead to dehydration, severe malnutrition as well as electrolyte imbalance that can be fatal for both mother and her unborn child(ren).

The cause and prevalence of HG are unknown due largely to the absence of larger scale, controlled research. Some studies estimate as many as 10% of pregnant women are affected. According to the Healthcare Cost & Utilization Project (HCUP), there are nearly 300,000 visits to ERs and hospitals due to HG. HG is hardly a rare disorder. Still, fewer than 20 studies were published on HG in 2010, while studies on birth defects which affect fewer children, number over 11,000.

After an extensive online search and months of continued research to locate statistics regarding Hyperemesis Gravidarum the Ayden Rae Foundation is appalled to report the outcome of the findings. Unfortunately, it has been since 2008 that any statistics have been tracked surrounding the true impact of Hyperemesis Gravidarum. The report before that was conducted in 1996. In 1996 there were approximately 68,000 documented cases of Hyperemesis Gravidarum in the U.S. and in 2008 Healthcare Cost & Utilization Project (HCUP) reported nearly 300,000 visits to the ER’s and hospitals due to HG.

Hyperemesis Gravidarum incidence rates are comparable to Breast Cancer rates. Yet, federal funding is not available for Hyperemesis Gravidarum Research, Awareness, and Education efforts. In 2008, there were close to (300,000) documented Hyperemesis Gravidarum related Emergency Room Visits and Hospital stays as Breast Cancer (185,000), as estimated by the American Cancer Society.

In 2011, an estimated 230,480 new cases of invasive breast cancer were expected to be diagnosed in women in the U.S., along with 57,650 new cases of non-invasive (in situ) breast cancer as estimated by the American Cancer Society. The new cases for Hyperemesis Gravidarum are unknown at this point due to the fact statistics are not being tracked and for the most part pregnant women who suffer from Hyperemesis Gravidarum oftentimes are misdiagnosed and do not receive proper treatment. Once the true facts and figures are properly calculated the impact that HG has on families worldwide will be astonishing.

  • ==== In2007,BreastCancerreceivedasignificantamountoffunding,7.5million,fromtheCongressionallyDirectedMedicalResearchProgramandHyperemesisGravidarumreceivednofundingorrecognition.
  • ==== In2007,BreastCancerreceivedasignificantamountoffunding,7million,andHyperemesisGravidarumreceivednofundingorrecognitionfromournation’smedicalresearchagency,theNationalInstitutesofHealth(100%difference).

Scientists who are working so hard to discover new treatments for medical conditions and cures should not be made to compete for limited research funding. Scientists must feel encouraged to develop Hyperemesis Gravidarum research as well. Both Breast Cancer and Hyperemesis Gravidarum research funding must continue to grow. Breast Cancer and Hyperemesis Gravidarum patients, equal in number, and should receive equal and adequate funding and promotion for research.

We, the undersigned, call on the Congress of the United States to make Hyperemesis Gravidarum research a national public health priority. Specifically, we ask the members of Congress to ensure that promotion and funding for Hyperemesis Gravidarum research is, at all times, comparable to those levels allocated for Breast Cancer and any other disease that is funded for the public health.

It is also theorized that HG is genetic and can be passed on from mother to children this also can lend to the explosive numbers of ER visits up from 68,000 in 1996 to 300,000 in 2008. Due to the lack of research no one knows for sure. Much needed research has yet to be done on the subject of HG to confirm or deny any such findings. USC and UCLA are awaiting funding for such research at this time. The Ayden Rae Foundation and its supporters are doing all that they can at this time to fund such research and more in aiding the fight for a cause and cure for HG http://www.aydenraefoundation.org/.

HG Fact 1 in every 3 HG pregnancies does not result in a live birth; Making Hyperemesis Gravidarum a National Priority will impact the world in a positive way through better treatment and later a cause and cure for Hyperemesis Gravidarum and may the United States lead the way.

http://www.aydenraefoundation.org/hyperemesis-gravidarum-petition/


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