Immune Deficiency Foundation
The Immune Deficiency Foundation is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research.
Primary immunodeficiency diseases are a group of more than 350 rare, chronic disorders in which part of the body's immune system is missing or functions improperly.. Years ago, a diagnosis of a primary immunodeficiency meant extremely compromised lives, not just for the patients but for their families as well. Today, with early diagnosis and appropriate therapies, many patients with that same diagnosis can live healthy, productive lives.
One of the greatest challenges faced by individuals diagnosed with primary immunodeficiency disease is finding the right information and resources when they need it. With knowledge and foresight from their personal experience, the Immune Deficiency Foundation (IDF) was founded by families of children with primary immunodeficiency diseases and their physicians to help meet those needs. It is with the spirit and energy of this keen perspective that IDF exists today, thriving as an organization dedicated to individuals living with primary immunodeficiencies.
Since 1980, IDF has provided accurate and timely information for the nearly quarter-million Americans who have been diagnosed with a primary immunodeficiency disease. Governed by a Board of Trustees – and supported by a Medical Advisory Committee comprised of some of the world's leading clinical immunologists, as well as hundreds of grassroots volunteers and a compassionate, professional staff – IDF has provided individuals and their families with vital knowledge and made tremendous strides in:
- Helping the patient and medical community gain a broader understanding of primary immunodeficiency diseases through education and outreach efforts;
- Promoting, participating, and funding research that has helped characterize primary immunodeficiency diseases and given patients and physicians substantially improved treatment options;
- Addressing patient needs through public policy programs by focusing on issues such as insurance reimbursement, patient confidentiality, ensuring the safety and availability of immune globulin therapy, and maintaining and enhancing patient access to treatment options.
Today, thousands of individuals and families affected by primary immunodeficiency diseases depend on IDF for advocacy, education and empowerment.