Organization

Barth Syndrome Foundation

Larchmont, NY | http://www.barthsyndrome.org
Joined in May 2013

About Us

ABOUT BSF

Barth syndrome is a rare, genetic, multi-system, disorder affecting boys and young men worldwide. Common symptoms include: cardiomyopathy (enlarged heart), neutropenia (a deficient white blood cell count), debilitating muscle…

Areas of Focus Include
  • Health & Medicine
  • Research & Social Science
Location
2005 Palmer Avenue #1033, Larchmont, NY 10538