Spina Bifida Association

  • VA

About Us

The mission of the Spina Bifida Association (SBA) is to promote the prevention of Spina Bifida and to enhance the lives of all affected.

SBA serves adults and children who live with the challenges of Spina Bifida. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are research, advocacy, education, and support.

Through its network of Chapters, SBA has a presence in more than 125 communities nationwide and touches thousands of people each year. Lives are changed by the programs SBA has created, the services the organization provides, and the accomplishments of its advocacy efforts.

Understanding Through Education

Each year, as many as 10,000 people are connected with accurate information from numerous reliable resources and publications through the National Resource Center on Spina Bifida - housed in our headquarters in Arlington, VA. Often, assistance is provided through a referral to a caring person at an SBA Chapter where compassionate support can be found in one's own community. The national headquarters of the Spina Bifida Association does not have the resources to offer direct financial aid to individuals.

The quest for new information, the celebration of lives being lived to their fullest, and the unity of a community built on caring and compassion are embodied through SBA's National Conference, Education Days, the Walk-N-Roll for Spina Bifida, and other community events.

SBA also supports all efforts to bring together leaders in health care and representatives of the Spina Bifida community. In 2003, a research agenda was defined at a ground breaking conference entitled "Evidence-Based Practice in Spina Bifida." This agenda is gaining momentum and yielding first fruits. The Third World Congress on Spina Bifida recently illustrated the most recent research in the field. Plans are underway to update the research agenda.

Through SBA's efforts, millions of people have received vital information about Spina Bifida and how it affects those who live with it. Countless women know about the importance of taking folic acid prior to pregnancy to reduce the risk of Spina Bifida and other neural tube defects as a result of SBA's outreach campaigns.