Director of Operations, HR, and Development (Director of Operations)

Generation Patient

Director of Operations, HR, and Development (Director of Operations)

FLSA Status: Exempt

Hours: Full-Time (40-50 hours per week)

Reports to: Executive Director

Location: Remote, US-based, with a preference for someone in the Washington DC area

Compensation: $85,000-95,000 annual salary, commensurate with experience. Benefits include healthcare stipend, dental, vision, and short-term disability insurance, home office stipend, PTO (including 12 vacation, 15 sick/safe leave days, and 11 holidays), and remote work.

Languages Required: English fluency

Generation Patient is an organization representing the 25 million+ young adults with chronic and rare conditions, primarily in the U.S. and abroad. Over the last few years, Generation Patient has led over 650 peer support meetings, driven policy agendas in clinical trial representation, patent reform, and increased oversight of pharmaceutical advertisements on social media. The organization has also provided feedback to federal agencies and contributed to multiple peer-reviewed publications, empowering patient-led evidence generation.

Although Generation Patient was formally established as a nonprofit in 2018, its roots date back to 2012 with an initial focus on young adults living with inflammatory bowel diseases. Since then, the organization has expanded its mission to represent young adults with all chronic and rare conditions (i.e., lupus, arthritis, sickle cell, diabetes, epilepsy, etc.), while continuing to operate one standalone disease-specific program in inflammatory bowel disease. Today, Generation Patient is supported by three full-time staff members and three contractors, with plans to double its team within the next two years to meet the growing need.

Generation Patient has established itself as a leading voice in patient advocacy, disability justice, and access to medicines, forging impactful partnerships and coalitions both in the U.S. and internationally. Supported by respected funders including Arnold Ventures and the Commonwealth Fund, the organization maintains full independence by declining all private health industry funding, including from the pharmaceutical, insurance, and PBM industries, ensuring accountability and integrity to the young adult patients it represents.

Director of Operations, Human Resources, and Development

The Director of Operations, Human Resources, and Development (Director of Operations) holds a central leadership role at Generation Patient, ensuring that the organization’s infrastructure, systems, and financial management effectively support its mission to advance health equity and amplify the voices of young adult patients. This position combines operational excellence with hands-on oversight of finances, grants, and organizational coordination across programs and staff. The Director of Operations partners with the Executive Director to ensure that organizational priorities move from idea to action. This role supports the entire team by coordinating follow-through and keeping the organization aligned—not by taking on others’ work, but by ensuring the right work gets done on time and together. This role will include project management.

Diversity, Equity, and Inclusion

Generation Patient recognizes that diverse perspectives drive strong solutions. We encourage applications from individuals of all races, ethnicities, disabilities, gender identities, and lived experiences, especially those shaped by or connected to chronic health conditions in young adulthood.

Primary Responsibilities

Organizational Operations (40%)

• Oversee the day-to-day internal operations of the organization, managing systems that support staff and program effectiveness.
• Respond to staff operational needs, including technology coordination, website support requests, and technological troubleshooting.
• Manage and optimize the organization’s CRM, ensuring accurate data tracking for funders, stakeholders, and advocacy partners.
• Develop and refine standard operating procedures and workflows that improve transparency, accountability, and collaboration.

Financial Management (10%)

• Oversee all accounting and financial operations in partnership with external accounting firms and the Executive Director.
• Lead annual budgeting, forecasting, and financial planning processes.
• Monitor cash flow, grant allocations, and spending to ensure fiscal responsibility.
• Coordinate payments for all grant-funded projects and general operations.
• Prepare monthly financial summaries and forecasts for the Executive Director and Board.

Grant Management and Fund Development (20%)

• Implement and maintain grant management processes, including proposal drafting, submission, reporting, and compliance tracking.
• Manage payment schedules and reporting deadlines for all grant programs and funder contracts.
• Collaborate on funder updates, reporting templates, and impact measurement deliverables.
• Assist with funder prospecting, identifying new opportunities aligned with Generation Patient’s strategic focus.
• Partner with program leads to manage current and future grant-funded projects, ensuring deliverables and timelines are met.

Staff and Internal Support (20%)

• Help supervise internal staff and consultants, providing accountability, mentorship, and structure to support their growth and development.
• Support internal coordination and project tracking across core program areas.
• Facilitate team meetings, ensure clear follow-up on priorities, and maintain strong communication within the team to drive effective collaboration.
• Create and oversee onboarding processes, and contribute to and develop HR policies that promote equity and well-being.

Compliance and Administration (10%)

• Ensure adherence to nonprofit compliance requirements, including financial, grant, and legal reporting obligations.
• Oversee insurance, contract, and vendor management (including insurance and benefits).
• Collaborate with the Executive Director and Board to maintain accurate documentation, filings and ensure internal audit readiness.

Key Qualifications

• 5-7 years of professional experience in nonprofit operations, finance, or organizational management.
• Demonstrated expertise in financial management, forecasting, and budgeting.
• Experience managing staff and fostering collaborative, mission-focused teams.
• Proven success with grantwriting, reporting, and funder relationship management.
• Strong project management, analytical, and systems-thinking skills.
• Proficiency with CRM tools (e.g., Salesforce, Airtable, or similar platforms).
• High attention to detail, reliability, and ability to juggle multiple priorities in a dynamic environment.
• Commitment to the mission and values of Generation Patient, including health equity and patient representation.

Applications will be reviewed and screened on a rolling basis, with a preference to applicants who apply by November 20, 2025.

To apply, please submit the following application materials in PDF via the Movement Talent Opportunity Board application portal by clicking the "Apply To This Job" button:

https://recruitcrm.io/apply/17615912390120064057fTp?source=Jobspage&new=yes

Applicants must include the following in a single PDF. For the purposes of this application, please do not use AI tools.

• Resume or CV
• A cover letter detailing your interest in Generation Patient’s mission and your expertise for the role. Please detail any project or work that you are particularly proud of and how it specifically aligns with the role. Please keep it no longer than two pages.
• Three references, including name, email address, phone number, and relationship to you.

Compensation: $85,000-95,000 annual salary, commensurate with experience. Benefits include healthcare stipend, dental, vision, and short-term disability insurance, home office stipend, PTO (including 12 vacation, 15 sick/safe leave days, and 11 holidays), and remote work.