Position Summary
The Senior Manager of Marketing & Communications is responsible for the day-to-day execution and administration of LBCA’s communications, marketing and PR “marcomm” activities. This role ensures that content, platforms, and outreach tools are implemented accurately, consistently, and on schedule in alignment with LBCA’s communications strategy. The Senior Manager of Marketing & Communications actively translates plans into action and keeps communications and marketing operations running smoothly including coordination of the monthly newsletter, social media channels, website and marketing collateral. This role reports to the Director of Marketing & Communications.
Essential Duties and Responsibilities
Content Production & Platform Management:
Manage the operations of marcomm projects including the website, newsletter, social media, webinars and other collateral with tasks including:
Communications & Marketing Operations
Qualifications
Location: US Based remote, East Coast preferred (to align with EST work hours 9-5)
About The Lobular Breast Cancer Alliance (LBCA)
LBCA engages patients, clinicians, and researchers to increase knowledge of invasive lobular carcinoma (ILC) aka lobular breast cancer and promote lobular breast cancer research. Working with the guidance of an international, expert scientific advisory board of breast cancer researchers and clinicians, and through growing collaborations with other breast cancer advocacy organizations in the US and internationally, LBCA provides a platform for ILC research, maintains a library of current lobular breast cancer studies, and identifies clinical trials and research advocacy opportunities with a focus on lobular breast disease. Educational materials include documents for patients translated into 15+ languages, and a growing library of video recordings of educational webinars about ILC, research findings and training on patient advocacy.
LBCA provides and disseminates widely, basic, educational information about what is currently known about ILC including early stage and metastatic lobular breast cancer, to enhance understanding about how lobular is different from other breast cancer subtypes, and to share any new knowledge gleaned from recent research. LBCA aims to empower patients to be more informed partners in their self-care and treatment and help clinicians to be more informed and confident in the treatment plans they promote. LBCA also fosters dialogue among clinicians and researchers to promote more research into the challenges of detecting and treating ILC, discuss groundbreaking findings, and identify new ILC research priorities and opportunities for collaboration.
LBCA was founded by volunteers and incorporated to begin operations as a 501(c)(3) tax exempt public charity in January 2022. LBCA is run by a small remote professional team around the country and a growing number of volunteers who work with LBCA on new initiatives and on increasing advocacy to spread the word about ILC and promote more research. LBCA currently has a 7-person board of directors.
LBCA Mission and Vision
As the only organization in the US dedicated to Invasive Lobular Breast Cancer (ILC), LBCA’s mission is to make all who are touched by ILC aware of its unique characteristics and the critical need for more ILC research, to be the go-to source for information on ILC studies, clinical trials and educational tools, to foster partnerships among patients, scientists, clinicians and breast cancer organizations to increase dialogue about ILC and research advocacy, and to fund vital ILC research.
LBCA’s Vision is a world in which lobular breast cancer is found early, treated effectively, and eradicated permanently.
The importance of marketing and communication to LBCA
What and how we share information about LBCA and about ILC is critical to our mission, making the marcomm roles absolutely essential to the LBCA team. There are approximately 7000 subscribers to the LBCA monthly newsletter. Newsletter stories are predominantly what is shared throughout the month in social media, as well as any new- breaking information about lobular breast cancer. So far, as a remote and tiny organization, LBCA has not had in person events. We only publish content that has a scientific basis and we use our expanding scientific advisory board to vet what we publish. We also rely on our 15 person patient advocate advisory board to help develop and review content that will be shared in lay language with our audience that is predominantly other women who have had or are living with ILC at all stages and do not have a science or medical background. Thus, what we publish and disseminate is our face and voice. It is the predominant way that we communicate to educate and promote more research into and awareness of ILC. And while our subscriber audience is predominantly those already diagnosed with ILC, it is also critical to our mission and vision that we reach the general public with our messages to raise awareness everywhere that breast cancer has types and lobular breast cancer, the second most common but woefully understudied, needs to be known. Thus while our day to day business is informing those with or touched by ILC and promoting more ILC research within the stakeholder research and clinical community already aware of ILC, our messaging campaigns also focus on raising awareness of ILC in the general public.
We want people to have heard of ILC before diagnosis and we want research to focus on it more. Right now, when people are diagnosed they have not heard of it, and feel quite alone. Right now, unfortunately, not enough is known about ILC to treat it any differently than the more common breast cancer type. And right now, though we are striving hard to change this, most hospitals and clinical care teams are not giving patients newly diagnosed with ILC comprehensive information about ILC nor about LBCA and that many resources exist including a patient community for patients with ILC. So the marcomm role is dual-purposed.
LBCA offers benefits that include: 13 paid holidays, paid vacation and sick time, a contribution only 403(b) plan (no employer matching), and an IHCRA plan (health premium reimbursement plan).