National Blood Clot Alliance
The National Blood Clot Alliance (NBCA) is a patient-led, voluntary health advocacy organization. NBCA volunteers include many of the nation's foremost experts on blood clots and blood clotting disorders. The mission of the National Blood Clot Alliance is to prevent, diagnose and treat thrombosis and thrombophilia through research, education, support and advocacy. NBCA programs include patient education and professional training on the signs, symptoms and prevention of blood clots and clotting disorders.
Although NBCA is growing quickly, it has retained its grassroots character; NBCA board members and volunteers are like part of an extended family. Our founding members were patients and medical professionals attending a thrombosis and thrombophilia workshop at The Centers for Disease Control in 2003. Sharing a common concern, they resolved to build a national organization to advocate for – and to educate and support -- those afflicted with clotting disorders. Each board member has been touched personally by blood clots, deep vein thrombosis (DVT), pulmonary embolism (PE) or such genetic variants as the factor V Leiden gene mutation.
NBCA combines the unique perspectives of healthcare providers, individuals afflicted with clotting disorders and community leaders who are passionate about this healthcare crisis. NBCA’s Medical and Scientific Advisory Board (MASAB) includes nationally recognized experts on thrombosis and thrombophilia.
NBCA works closely with the Centers for Disease Control (CDC), thrombophilia centers, and anticoagulation clinics on its Stop-the-Clot ® Education Project.