Nonprofit
CHARGE Syndrome Foundation Inc.
Mission
The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE Syndrome and their families; to gather, develop, maintain and distribute information about CHARGE Syndrome; and to promote awareness and research regarding its identification, cause and management.
About Us
CHARGE Syndrome is a rare genetic disorder affecting approximately one in 10,000 births. The condition varies with each person but typically includes heart defects, sensory impairment (including vision, hearing, smell and balance), mental retardation, genital problems, swallowing and feeding problems, airway problems, and other medical, developmental, and behaviorial issues. The CHARGE Syndrome Foundation sponsors a biennial international conference for professionals and families;publishes a quarterly newsletter, a manual for management of the syndrome, and other publications; supports research; and provides information, outreach, and other support to persons with CHARGE and their families.
Cause Areas Include
- Disability
- Health & Medicine
- Volunteering
Location & Contact
- 800-442-7604
- 141 Middle Neck Road, Sands Point, New York, US
Discover Your Calling
Find opportunities to change the world with the latest social-impact job, internship, and volunteer listings. Plus, explore resources for taking action in your community.
Already a user? Log in