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Muscular Dystrophy Association - Metro Washington, DC

Joined in February 2019

About Us

The Muscular Dystrophy Association is the world’s leading nonprofit health agency dedicated to finding treatments and cures for muscular dystrophy, amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases. As the largest source of funding for neuromuscular disease research outside of the federal government, MDA has committed more than $1 billion since our inception to accelerate the discovery of therapies and cures. 

MDA supports the largest network of multidisciplinary clinics providing best in class care at more than 150 of the nation’s top medical institutions, and our resource hub serves the community with one-on-one specialized support. Each year thousands of children and young adults learn vital life skills and gain independence at summer camp and through recreational programs, at no cost to families.

Here are the ways we’re helping individuals with neuromuscular disease live longer and grow stronger:

Innovations in Science

At MDA, we take a big-picture perspective across the full spectrum of neuromuscular diseases to uncover breakthroughs that accelerate treatments and cures. The power in our research approach is that we can often apply learnings from one disease to achieve progress in others to bring urgently needed answers to our families. 

Here are some of our current highlights:

  • Research: MDA is the largest source of funding for neuromuscular disease research outside the federal government and has committed more than $1 billion in funding since its inception.
  • Treatments: Research we have supported is directly linked to approved, life-changing therapies across multiple neuromuscular diseases.
  • Technology: Our MOVR platform is the first and only data hub that uniquely aggregates healthcare, genetic, and patient-reported data, transforming health outcomes and drug development in neuromuscular disease.

Innovations in Care

We know that early diagnosis, highly specialized care and access to promising clinical trials help ensure the best possible outcomes for individuals and families facing muscular dystrophy, ALS and related life-threatening diseases. That’s why MDA is here to provide care for kids and adults from day one. Our MDA Care Centers offer families best-in-class, comprehensive care from a wide variety of health care specialists at one location on the same day, while our trained information specialists and educational resources are available to offer guidance and support through every step of the journey.

Here are some of our current highlights:

  • MDA Care Centers: We support the largest network of care centers providing best-in-class comprehensive clinical care at top health care institutions.
  • MDA Resource Center: Our national Resource Center is staffed by a dedicated team of knowledgeable specialists offering one-on-one support at no cost.
  • MDA Summer Camp: Every year thousands of children and young adults learn vital life skills and independence at MDA Summer Camp and other recreational programs at no cost to families.

The Muscular Dystrophy Association is the world’s leading nonprofit health agency dedicated to finding treatments and cures for muscular dystrophy, amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases. As the largest…

Issue Areas Include

  • Children & Youth
  • Disability
  • Health & Medicine
  • Science & Technology
  • Volunteering

Location

  • 11800 Sunrise Valley Dr, Ste 1210, Reston, VA 20191, United States

Photos for Muscular Dystrophy Association - Metro Washington, DC

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