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Organization

The Calliope Joy Foundation/Cure MLD Ambassador Program

Joined in August 2019

About Us

We advocate for families impacted by leukodystrophy, a family of inherited neurological disorders that impact 1 in 7400 births. Children with the disease appear healthy at birth and lose the ability to walk, talk, eat and see.

We advocate for families impacted by leukodystrophy, a family of inherited neurological disorders that impact 1 in 7400 births. Children with the disease appear healthy at birth and lose the ability to walk, talk, eat and see.

Issue Areas Include

  • Children & Youth
  • Disability
  • Health & Medicine

Location & Contact

Photos for The Calliope Joy Foundation/Cure MLD Ambassador Program

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