Nonprofit
NR2F1 Foundation
About Us
The NR2F1 Foundation is a 5 year old, 501c3 nonprofit empowering families and individuals worldwide living with rare NR2F1 gene variants through education, advocacy and research.
We are a small but mighty team of parents, volunteers and family members. The syndrome is called Bosch-Boonstra-Schaaf optic atrophy syndrome (BBSOAS) and the symptoms include intellectual disability/developmental delay, Cerebral Visual Impairment, seizures and a host of ocular impairments.
We are a cohesive, supportive and motivated team changing lives for the better every day. If you are looking to expand your resume and use your skills to make a real difference, we encourage you to apply!
The NR2F1 Foundation is a 5 year old, 501c3 nonprofit empowering families and individuals worldwide living with rare NR2F1 gene variants through education, advocacy and research.
We are a small but mighty team of parents, volunteers and family members. The syndrome is called Bosch-Boonstra-Schaaf optic atrophy syndrome (BBSOAS) and the symptoms include intellectual disability/developmental delay, Cerebral Visual Impairment, seizures and a host of ocular impairments.
We are a cohesive, supportive and motivated team changing lives for the better every day. If you are looking to expand your resume and use your skills to make a real difference, we encourage you to apply!
Issue Areas Include
- Children & Youth
- Disability
- Family
- Health & Medicine
- Volunteering
Location & Contact
- carlie.monnier@nr2f1.org
- Royal Oak, MI, USA
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