Families of SMA

Families of Spinal Muscular Atrophy is the leading International organization dedicated solely to eradicating SMA by: promoting and supporting research, helping families cope through informational programs and support, and educating the public and the medical community about SMA.

Families of SMA (FSMA) is a volunteer driven non-profit. FSMA is the largest private funder of SMA research. Families of SMA has 31 Chapters throughout the United States and over 85,000 members and supporters. We are a collaborative organization where families, friends and researchers are all working together towards the same goal.

Spinal Muscular Atrophy is the number one genetic killer of children under the age of two. One in 40 people carry the gene that causes SMA.