E WE FOUNDATION

To provide resources and support for families affected by Edwards Syndrome or Trisomy 18 and other rare diseases, while changing the medical perspective through advocacy, education, and public policy

The E.WE Foundation is a 501c3 healthcare advocacy organization established in 2019 to provide resources and support to families affected by rare diseases like Edwards Syndrome or Trisomy 18.

The E.WE Foundation offers three (3) core programs: LEAP, ZEBRA, and STRIPE.

LEAP is a resource program promoting health literacy, community education, and patient advocacy.

ZEBRA is a comfort care program that promotes self care and mental health for families with rare diagnoses, medical complexities and special health needs.

STRIPE is an economic assistance program designed to assist with the financial burden associated with caring for an individual with Trisomy 18.

The E.WE Foundation is committed to ensuring all patient populations have equitable access to quality healthcare, resources, health & financial literacy and disease education.