Children's Tumor Foundation

Neurofibromatosis, or NF, is a genetic disorder that affects one in every 3,000 people. It can cause tumors to grow on nerves throughout the body, and complications from NF can lead to disfigurement, deafness, blindness, skeletal abnormalities, learning disabilities, malignancies, and debilitating pain. NF affects all populations equally, and there is not yet a cure.

The Children’s Tumor Foundation is a 501(c)(3) not-for-profit organization dedicated to finding effective treatments for the millions of people worldwide living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2, and schwannomatosis. NF causes tumors to grow on nerves throughout the body and may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. NF affects 1 in every 3,000 births across all populations equally. There is no cure yet - but the Children’s Tumor Foundation mission of driving research, expanding knowledge, and advancing care for the NF community fosters our vision of one day ending NF. For more information, please visit www.ctf.org.