Neurofibromatosis Midwest

NF Midwest became an official non-profit in December of 1981 and was founded by parents who had children with the rare disorder neurofibromatosis, They were looking for treatments, clinics, education, support, and community. This is still the basis of NF Midwest's work today. We have funded research projects including the discovery of the NF gene in the 90s' and we've helped increase federal research. NF Midwest continues to support research to find treatments and ultimately a cure for NF. We also work with scientists, clinics, and pharmaceutical companies to improve care and represent the NF community. NF Midwest also works to educate and support the NF community in the Midwest. We provide support and education to people personally and via social media etc. We also hold educational seminars and webinars. Additionally, we send children with NF to camp, offer scholarships, and work to create future leaders.