National Tay-Sachs & Allied Diseases Association
The mission of the National Tay-Sachs & Allied Diseases Association (NTSAD) is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives. NTSAD's Family Services program provides comprehensive support services to affected families and individuals, including holding an Annual Family Conference for the past 39 years. In addition, NTSAD's research goals are to direct, fund and promote cutting-edge research to develop treatments and cures as these diseases are fatal in children and progressively debilitating in adults. We are hopeful, however, as promising research is advancing.
NTSAD is celebrating its 60th anniversary in 2017, having been founded in 1957 by a small group of concerned parents with children affected by Tay-Sachs disease. NTSAD was an early pioneer in the development of community education and carrier screening programs to prevent these genetic diseases. Education continues to play an important role as prevention is the only cure until treatments are found.