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Nonprofit
Alport Syndrome Foundation, Inc.
Mission
About Us
ASF is the leading independent non-profit organization in the United States serving and giving a voice to the Alport Syndrome community.
Alport Syndrome is a rare genetic kidney disease that causes kidney failure, hearing loss and vision problems. Fifty percent (50%) of boys with the predominant form of the disease will experience kidney failure by age 25 and 90% by age 40, most often preceded by hearing loss. Girls are affected too, with some impacted similarly to boys, but most having a later disease progression.
ASF is the leading independent non-profit organization in the United States serving and giving a voice to the Alport Syndrome community.
Alport Syndrome is a rare genetic kidney disease that causes kidney failure, hearing loss and vision problems. Fifty percent (50%) of boys with the predominant form of the disease will experience kidney failure by age 25 and 90% by age 40, most often preceded by hearing loss. Girls are affected too, with some impacted similarly to boys, but most having a later disease progression.
Cause Areas Include
- Community Development
- Education
- Health & Medicine
- International Relations
- Volunteering
Location & Contact
- 480 800 3510
- PO Box 4130, Scottsdale, Arizona, US
