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Joined in December 2019

About Us

The Haley's Heroes Foundation exists to find and fund a cure for Batten Disease. Established in honor of one little girl with Batten Disease CLN1 by her parents who are committed to finding a cure to save her life and all those effected by Batten Disease. The Foundation works to build a better future for those who suffer from this rare disease through awareness, research, and advancing of breakthrough treatments. The Haley's Heroes Foundation is a project of The Giving Back Fund, a 501(c)(3) non-profit organization with federal tax-exempt status as a public charity.

The Haley's Heroes Foundation exists to find and fund a cure for Batten Disease. Established in honor of one little girl with Batten Disease CLN1 by her parents who are committed to finding a cure to save her life and all those effected by…

Issue Areas Include

  • Children & Youth
  • Health & Medicine
  • Research & Social Science

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