Organization

Syndromes Without A Name USA

Joined in March 2009

About Us

We are an organization that advocates for children and young adults who have syndromes without a name. We offer support, advice and information on the challenges that families face when there is no diagnosis. We also advocate for changes in the medical community that will benefit undiagnosed individuals.

We are an organization that advocates for children and young adults who have syndromes without a name. We offer support, advice and information on the challenges that families face when there is no diagnosis. We also advocate for changes in…

Areas of Focus Include

  • Children & Youth
  • Health & Medicine

Location

  • Otsego, MI