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Organization

Save Sight Now

San Rafael, CA | https://www.savesightnow.org
Joined in January 2020

About Us

Save Sight Now is a small organization on a mission to cure Usher Syndrome Type1B - a rare genetic disorder that leaves children deaf from birth, destroys their vestibular system and rapidly robs them of their vision. We have partnered with the Foundation Fighting Blindness – the World’s leading retinal foundation dedicated to curing blindness.

Save Sight Now works together with the FFB team to coordinate events – online and in person. We create awareness about Usher Syndrome, educate families, and work with USH1B families interested in fundraising, but need our help.

We are on a mission to save thousands of children from going blind. With enough funding we have the potential to push researchers over the finish line. Research teams we support are working on promising sight saving treatments that could reach clinical trials within the next two years, but they need funding. If you’re interested in having tangible impact and joining a team that is poised to change the lives of thousands of children, please send us your resume.

We are always looking for driven, caring individuals to work with. Even if the positions below aren’t a good match, you can still reach out with your resume and desired work at: rosalyn@savesightnow.org


Our Social Media Channels:

https://www.facebook.com/savesightnow

https://www.instagram.com/savesightnow/?hl=en

https://twitter.com/savesightnow

Save Sight Now is a small organization on a mission to cure Usher Syndrome Type1B - a rare genetic disorder that leaves children deaf from birth, destroys their vestibular system and rapidly robs them of their vision. We have partnered with…

Issue Areas Include

  • Children & Youth
  • Disability
  • Health & Medicine
  • Philanthropy
  • Science & Technology

Location & Contact

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