Huntington's Disease Society of America - Northeast Region

From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families. HDSA's network of chapters, affiliates, HDSA Centers of Excellence, social workers and support groups provides a seamless connection for help, education and outreach to HD families and health care professionals across the United States.

"This Land is Your Land"...

In 1967, the dynamic and determined Marjorie Guthrie launched an all-out assault on the disease that would soon claim her husband, music legend Woody Guthrie, and threatened their three children. Her extraordinary efforts turned her into a global voice in the fight against Huntington’s disease.

With over 50+ Volunteer led Chapter & Affiliates, volunteers are supporting families impacted by HD locally and across the nation!

Every year at our National Convention, these volunteers come together to learn about HD science and the movement they are making! We would love to welcome new faces and ideas.