SMOC1 Foundation for Hope

The SMOC1 Foundation for Hope was established to spur research on SMOC1 gene dysfunction that causes short stature, eye, bone, and other abnormalities. We engage doctors, scientists, patients, and families in our effort to build an interdisciplinary community, spread awareness, and advance research toward improvement of the lives of affected individuals and their families and caregivers.

We are a small organization but one that is deeply dedicated to our mission and the families we serve. This condition is rare and therefore not of interest to many large stakeholders but it is of intense interest to those whose children have the genetic condition and all of the corresponding health complications.