Jenifer Estess, her family, and friends, started Project A.L.S. in 1998, when Jenifer was diagnosed with the fatal brain disease at the age of thirty-five. Upon discovering that there were no effective treatments, Project A.L.S. set out to put medicine into place.
The mission today is to bring the best science to ALS patients in the form of effective treatments and, ultimately, a cure. Project A.L.S. has raised over $60 million, directing 90% to research programs. The majority of fundraising proceeds goes to support investigations in Genetics, Drug Discovery, Stem Cells, and Disease Pathways.
The hallmark of Project A.L.S. research is collaboration. Researchers who were competitors now play on the same team, meet regularly, share data openly, and work rationally, constructively, and aggressively toward shared goals.