Trustees for the United Mitochondrial Disease Foundation (UMDF) Board of Trustees

UMDF is seeking passionate and skilled individuals to join our Board of Trustees. As a trustee, you will play a critical role in shaping the organization’s mission and strategy, ensuring strong governance, advancing financial sustainability, and serving as an advocate for the mitochondrial disease community.

Key Responsibilities

• Provide strategic leadership and oversight to advance UMDF’s mission, vision, and strategic plan.
• Serve as an ambassador for UMDF, building awareness and credibility in your personal and professional networks.
• Participate in fundraising by making a personal annual contribution and engaging in donor cultivation, sponsorships, and partnerships.
• Ensure strong governance and compliance with nonprofit best practices, policies, and legal obligations.
• Contribute your skills, expertise, and perspective to board discussions and committee work.
• Actively participate in four board meetings per year (virtual and in-person), serve on a board committee, and attend UMDF events when possible.

Current Board Recruitment Focus

• One trustee with expertise in Public Relations & Communications (media strategy, storytelling, brand reputation, external media connections)
• One trustee with expertise in Data, Technology & Systems (Salesforce, data strategy, digital transformation, applications)

Two additional trustees with backgrounds in any of the other areas listed below:

• Fundraising & Philanthropy (donor engagement, campaigns, corporate partnerships)
• Finance & Investment (audit, budgeting, nonprofit financial oversight)
• Legal & Governance (nonprofit compliance, board leadership)
• Healthcare Administration (clinical operations, patient services, policy)
• Advocacy & Public Affairs (policy influence, patient voice, public engagement)
• Business Leadership (strategy, operations, innovation, entrepreneurship)

We also strongly value diversity of backgrounds, experiences, geography, and demographics to reflect the community we serve.

Commitment

• Term: 3 years (renewable based on engagement and capacity)
• Time: Approx. 4–10 hours/quarter (board meetings, committee work, events)
• Philanthropy: Trustees are expected to make a personal financial contribution each year and assist in UMDF’s fundraising efforts.

The Opportunity

• Advance groundbreaking science and accelerate treatments and cures.
• Provide a strong voice for patients and families living with mitochondrial disease.
• Contribute your expertise to a mission-driven organization at a pivotal time in its growth.
• Join a passionate, collaborative, and nationally respected board and leadership team.

How to Apply

Interested candidates can submit a short statement of interest and CV/resume to: janet@umdf.org