The Akari Foundation

Mission

Educate and empower the Hispanic community about rare neuromuscular diseases, providing resources, awareness, advocacy, and education entirely in Spanish, with a focus on Duchenne muscular dystrophy.

The Akari Foundation is a nonprofit organization dedicated to empowering Hispanic families affected by rare neuromuscular diseases. We believe that language should never be a barrier to care, which is why all of our education, advocacy, and support programs are offered entirely in Spanish.

We serve families across the United States, Puerto Rico, Mexico, and Latin America, providing culturally responsive resources, emotional support, and guidance to help them navigate complex healthcare systems.

Our values are rooted in equity, compassion, education, and community empowerment. We work to ensure that every family has access to accurate information, clinical opportunities, and a supportive network that truly understands their journey.

Together, we are building a world where no Hispanic family facing a rare neuromuscular disease feels alone.